Characterizing parent language about home respiratory technology for children

Kiara Smith, Sara Munoz-Blanco, Holly Vo, Aya Igaki-Meader, Carrie M. Henderson, Benjamin Wilfond, Renee D. Boss, Pamela K. Donohue, Department of Pediatrics, Johns Hopkins University School of Medicine, Department of Pediatrics, University of Washington School of Medicine, Treuman Katz Center for Pediatric Bioethics, Seattle Children, s Research Institute, Johns Hopkins University, Division of Critical Care Medicine, Louisiana State University Health Sciences Center, New Orleans, Johns Hopkins Berman Institute of Bioethics, Department of Population, and Reproductive Health, Johns Hopkins School of Public Health

Journal of Child Health Care

Published online on May 28, 2026

Abstract

Journal of Child Health Care, Ahead of Print.
This study’s objective was to develop a taxonomy of family-centered vocabulary for counseling about pediatric invasive home mechanical ventilation. We analyzed interviews with 38 families who faced decisions about home ventilation by creating, indexing, ...