“It just feels morally not right to Sell the data”: Ethical and social perspectives on human genomic data sharing in Uganda—A phenomenological qualitative study
Published online on August 02, 2025
Abstract
Research Ethics, Volume 22, Issue 2, Page 252-271, April 2026.
While genomic data sharing enhances transparency and research efficiency, it also raises significant ethical and social challenges. This study explored stakeholders’ perspectives on these issues, particularly around privacy, confidentiality, and equity in ...
While genomic data sharing enhances transparency and research efficiency, it also raises significant ethical and social challenges. This study explored stakeholders’ perspectives on these issues, particularly around privacy, confidentiality, and equity in ...