Fathering a Child With a Progressive Life-Limiting Condition in the Context of Pediatric Palliative Care: A Qualitative Interview Study

Marianne Sjuls, Liv Fegran, Mette Spliid Ludvigsen, Nastasja Robstad, Faculty of Health and Sport Sciences, Department of Health and Nursing Science, University of Agder, Faculty of Nursing and Health Sciences, Nord University

Qualitative Health Research

Published online on December 13, 2025

Abstract

Qualitative Health Research, Ahead of Print.
Fathers report feeling sidelined and being treated as secondary parents in healthcare settings. Despite their vital caregiving contributions, fathers remain underrepresented in pediatric palliative care research, particularly outside oncological contexts. ...