“How Long Will This Heart Beat?”—Temporal Experiences of Adults With Congenital Heart Disease: An Interpretative Phenomenological Analysis

Daniel Broschmann, Lisa Nebel, Monika Sadlonova, Claudia Dellas, Matthias Rose, Christoph Paul Klapproth, Timothy Le Butt, Christoph Herrmann-Lingen, Department of Psychosomatic Medicine and Psychotherapy, University Medical Center Göttingen, German Center for Cardiovascular Research , Partner Site Göttingen, Department of Geriatrics, University Medical Center Göttingen, Department of Cardiovascular and Thoracic Surgery, University Medical Center Göttingen, Department of Psychiatry, Massachusetts General Hospital, Department of Pediatrics and Adolescent Medicine, Division of Pediatric Cardiology and Intensive Care Medicine, University Medical Center, Department of Psychosomatic Medicine, University Medical Center Berlin, Berlin Institute of Health at Charité , Universitätsmedizin Berlin, BIH Biomedical Innovation Academy, BIH Charité Digital Clinician Scientist Program

Qualitative Health Research

Published online on March 25, 2026

Abstract

Qualitative Health Research, Ahead of Print.
Congenital heart disease (CHD) is one of the most prevalent congenital conditions. Over 90% of individuals with CHD now survive into adulthood, yet many experience physical limitations that can lead to a sense of exclusion from social participation. ...