Evaluating a toolkit for end-of-life care planning with people with intellectual disabilities: An exploration of implementation outcomes within intellectual disability social care services

Andrea Bruun, Amanda Cresswell, David Jeffrey, Leon Jordan, Richard Keagan-Bull, Jo Giles, Faye Gardiner, Meg Wilding, Nicola Payne, Sarah Swindells, Sarah L. Gibson, Rebecca Anderson-Kittow, Irene Tuffrey-Wijne, Department of Public Health, Learning Disability and Mental Health Nursing, School of Nursing, Allied and Public Health, Kingston University London, Kingston upon Thames, Dimensions UK Ltd, Milton Keynes

Journal of Intellectual Disabilities

Published online on August 25, 2025

Abstract

Journal of Intellectual Disabilities, Ahead of Print.
This study used qualitative surveys and focus groups to evaluate the implementation of an end-of-life care planning toolkit within intellectual disability social care services, by exploring whether it is beneficial and workable in this setting. ...