The impact of congenital cytomegalovirus infection among families and caregivers: A qualitative analysis of responses to a public consultation on newborn screening in the UK

Rosamund Greiner, Sarah Dewar, Christine E. Jones, Marthe Le Prevost, Tushna Vandrevala, Cristina Visintin, Heather Bailey, Institute for Global Health, University College London , CMV Action, Faculty of Medicine and Institute for Life Sciences, University of Southampton and NIHR Southampton Clinical Research Facility and NIHR Southampton Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, MRC Clinical Trials Unit, University College London , Centre for Applied Health and Social Care Research, Faculty of Health, Social Care and Education, Kingston University, UK NSC Secretariat

Journal of Health Services Research & Policy

Published online on October 09, 2025

Abstract

Journal of Health Services Research & Policy, Ahead of Print.
ObjectivesTo describe the impact associated with congenital cytomegalovirus (cCMV) infection and experiences and perceptions of people with experience of CMV in pregnancy and families / caregivers of children diagnosed with cCMV, who responded to a UK ...