A Qualitative Study to Characterize the Experiences of Patients and Caregivers With Dementia Diagnostic Disclosure Communication and Care Planning

Joanna Paladino, Heily Chavez Granados, Jade A. Connor Eruchalu, Carine Davila, Liliana Ramirez Gomez, Alissa Bernstein Sideman, Daniel Dohan, Elizabeth Lindenberger, Lindsay Dow, Ana-Maria Vranceanu, Deborah Blacker, Christine S. Ritchie, Massachusetts General Hospital, Harvard Medical School, University of California San Francisco, San Francisco

Journal of Geriatric Psychiatry and Neurology

Published online on October 15, 2025

Abstract

Journal of Geriatric Psychiatry and Neurology, Volume 39, Issue 4, Page 431-452, July 2026.
BackgroundClinician communication at the time of a dementia diagnosis often inadequately addresses patient and caregiver needs. We aimed to characterize the communication experiences of patients and caregivers affected by dementia using an evidence-based ...