Family caregivers’ needs for information on pediatric cystic fibrosis: A qualitative study

Samara Macedo Cordeiro, Helen Bras da Silva, Fernanda Machado Silva-Rodrigues, Faculty of Nursing, State University of Campinas , Campinas - SP, Santa Casa de São Paulo School of Medical Sciences , São Paulo - SP, School of Nursing, University of São Paulo , Ee Usp, São Paulo - SP

Journal of Child Health Care

Published online on November 26, 2024

Abstract

Journal of Child Health Care, Volume 30, Issue 1, Page 50-63, March 2026.
Cystic fibrosis (CF) affects not just patients but also their families, highlighting the need for a comprehensive care approach. This descriptive qualitative study aimed to explore the informational needs of family caregivers of children with CF, focusing ...