Family perceptions of prolonged hospitalization for children with complex chronic conditions: Between losses and adaptations in an uncertain future

Danton Matheus de Souza, Rodrigo dos Santos Nascimento, Ana Paula Scoleze Ferrer, Mariana Vieira de Souza, Lisabelle Mariano Rossato, Elaine Buchhorn Cintra Damião, School of Nursing, University of São Paulo, São Paulo, Faculty of Medicine, University of São Paulo, São Paulo, RKH Klinikum Ludwigsburg

Journal of Child Health Care

Published online on January 30, 2025

Abstract

Journal of Child Health Care, Volume 30, Issue 1, Page 123-135, March 2026.
The aim of this study was to understand the family perception and emotional impacts on caregivers of children with chronic conditions who remained hospitalized in intensive care units for an extended period. A qualitative, descriptive-exploratory study, ...