Long-Distance Family Caregivers’ Perceptions of Burden and Strain Scales Developed for Proximate Family Caregivers

Richard E. Chunga, Verena Cimarolli, Francesca Falzarano, Catherine Riffin, Sara Czaja, Kathrin Boerner, Gerontology Department, University of Massachusetts Boston, LeadingAgeLTSS Center , UMass Boston, University of Southern California, Los Angeles, Weill Cornell Medicine, New York, Carl von Ossietzky Universität Oldenburg

Journal of Applied Gerontology

Published online on November 27, 2025

Abstract

Journal of Applied Gerontology, Ahead of Print.
There is a growing number of long-distance family caregivers (LDCs) of older adults with dementia, yet burden and strain scales have not been designed to consider their unique needs, challenges, and experiences. This report draws on open-ended responses ...