Domains of Caregiving in Parkinson’s Disease: A Framework Developed Through Perspective Mapping

Sandhya Seshadri, Kristin Corey Magan, Angela Contento, Jennifer R. Mammen, Benzi M. Kluger, Department of Neurology and Center for Health , University of Rochester, College of Nursing and Health Sciences, University of Massachusetts Dartmouth, Warner School of Education , Human Development, University of Rochester

American Journal of Hospice and Palliative Medicine®

Published online on April 27, 2026

Abstract

American Journal of Hospice and Palliative Medicine®, Ahead of Print.
BackgroundCarers of Persons with Parkinson’s disease (PwP) have significant palliative care needs that are not adequately addressed in current models of care. To provide holistic and targeted support to carers it is important to understand their ...