Using Experience-Based Co-Design With Resident-Physicians and Black Community Members to Enhance Goals-of-Care Conversation Skills Training: Findings and Methodological Modifications

Rebecca Wright, Kavita Chapla, Amarpreet Kaur Ahluwalia, Ashley Booth, Eojin Choi, Lydia Sue Koh Krienke, Katie E. Nelson, Ekene Ojukwu, Ben Roberts, Danetta Sloan, Christy Swain, Janiece L. Taylor, David S. Wu, Johns Hopkins School of Nursing, Perelman School of Medicine, University of Pennsylvania, University of Maryland - Pulmonary , Critical Care Medicine, Johns Hopkins Bayview Palliative Care Program, Johns Hopkins School of Medicine, Johns Hopkins School of Medicine, Project HOME Street Medicine Team in Philadelphia, Department of International Health, Johns Hopkins Bloomberg School of Public Health, San Quentin Rehabilitation Center, California Correctional Health Care Services, San Quentin, Department of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health

American Journal of Hospice and Palliative Medicine®

Published online on May 07, 2025

Abstract

American Journal of Hospice and Palliative Medicine®, Volume 43, Issue 7, Page 700-719, July 2026.
Background:Black patients in the US face significant disparities in palliative care, including experiences of goals of care conversations.Aim:The purpose of this study was to describe and appraise an experience-based co-design study grounded in ...