“The Best, Most Difficult Thing I’ve Ever Done”: The Complex Experiences of Palliative and Hospice Familial Caregivers

Hannah Rachiele, Kathryn Levy, Gina Schuster, Sheila Conboy, Pei C. Grant, Christopher W. Kerr, Research Department, Palliative Care Buffalo, Office of Biomedical Research, University at Buffalo, The State University of New York, Phronesis Consulting

American Journal of Hospice and Palliative Medicine®

Published online on February 05, 2026

Abstract

American Journal of Hospice and Palliative Medicine®, Ahead of Print.
IntroductionCaring for chronically or terminally ill individuals comes with unique challenges and circumstances that are specific to each situation and individual involved. Studies on caregiving have often concentrated on the negative physical and ...